Rik shares his experiences of user-centred design for ‘Dementia Connect‘ — a service to improve access to advice and support for anyone worried about, living with or affected by these progressive-terminal brain diseases. Our conversation also covers Rik’s pathway into User Experience (UX), the value of coding knowledge for UX professionals’ and his involvement with the UK chapter of the User Experience Professionals’ Association (UXPA (UK)). If you are interested in inclusive design and working with vulnerable audiences then you will get a lot from this!
NOTE: During this episode we’ll be talking about dementia, a family of progressive-terminal brain diseases which are now the leading cause of death in the UK. Some people may find aspects of this topic distressing.
Today I am pleased to announce the launch of Just Another Day: A Comic About Brexit, in both English and Spanish language versions. We are very grateful to Latin American House and MPB Solicitors, for allowing us to make a comic about an issue which is so urgent for so many people.
The uncertainty generated by Brexit motivated us to prepare a comic that explains in an educative and informative way the different options that Europeans and their families have available to minimise the impact of Brexit.
Concept and story by Francisco de la Mora and Ernesto Priego.
Art by Ricardo Peláez.
Graphic design by Daniela Rocha.
The single-page comic also comes with an additional information sheet prepared by Manuel Padilla Behar, from MPB Solicitors. The text in the comic was translated from the original Spanish into English by Ernesto Priego.
With special thanks to Helen Calderon for proofreading and feedback.
The comic can be also downloaded as a PDF file and cited from figshare:
Location: City, University of London, Room A130, College Building Entrance (Map)
This panel brings together service users, health care professionals and artists who are working to support those with dementia to create narratives of self. Faced with challenges to a sense of ‘who you are’, and ‘who you might become’, our panellists explore how such concepts might be adapted or preserved through the process of storytelling. This session is open to anyone who is either working in this area, caring for someone with dementia or living with the illness themselves.
Clare Allan (chair) lectures in creative writing at City, University of London. A former service user, she has written extensively on matters relating to mental health. Her novel, Poppy Shakespeare, a satire on mental health services, was short-listed for numerous awards, including Mind Book of the Year, the Guardian First Book Award and the Orange Prize for new writers. She writes a column for The Guardian on issues concerning mental health, which has been running since 2006.
Tracey Shorthouse, aged 48, is diagnosed with Posterior Cortical Atrophy and Early Onset of Alzheimer’s Disease. A retired community staff nurse, she is the author of I Am Still Me, a poetry collection and is involved with a variety of dementia projects and organisations such as Dementia UK’s Lived Experience Advisory Panel (LEAP), Dementia Action Alliances (DAA), the Dementia Engagement and Empowerment Project (DEEP) and The Angela Project.
Toby Williamson is an independent consultant working in the fields of adult and older people’s mental health, dementia, mental capacity, and safeguarding. He has many years’ experience of working in and managing frontline mental health services, research, evaluation, practice and service development, and policy work, and for the last ten years has particularly focused on dementia and the Mental Capacity Act. Toby has co-authored a book on mental health and mental capacity legislation and is currently co-authoring a book on rights, values and dementia.
Susanna Howard is a writer, actor and theatre maker who founded and runs the arts, literature & dementia charity Living Words. Living Words run care home residency programmes working one-to-one with people experiencing dementias and the staff who work with them. Susanna is currently Visiting Research Fellow at Roehampton University Poetry Centre.